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      Mental health services and resources for children with developmental disabilities and their families: scan of local practices, gaps, and opportunities created

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          Abstract

          Background

          Mental health concerns in children with disabilities are common and have a significant and negative impact. Clinicians have reported high demand for this population to receive early, targeted, and family-centred mental health interventions.

          Objective

          We sought to map out and describe existing pediatric mental health services/resources for children with disabilities and their families across clinical sites and local and online communities.

          Methods

          Using a mixed-method triangulation study design, we outreached to clinical managers at the participating clinical sites and conducted a rapid online search of local in-person, telehealth, and web-based information. The nature, access method, admission criteria, target, focus, and other pertinent information were recorded and analyzed using descriptive statistics and a narrative synthesis approach.

          Results

          Eighty-one ( n = 81) services/resources (in-person, n = 48; telehealth, n = 10; web-based information, n = 33) were identified. Few ( n = 6, 13%) in-person services had a method of care access through an online booking portal. Nearly half of in-person resources ( n = 23, 47%) had admission criteria specific for children with disabilities (e.g., diagnosis, age limit), and many ( n = 32, 67%) required a formal referral. A small number of in-person and telehealth services targeted the mental health concerns of the entire family ( n = 23, 47%; n = 2, 20%). Very few ( n = 13, 16%) services incorporated follow-up support. Important gaps emerged for certain populations (e.g., children with cerebral palsy). Practitioners’ inadequate training when intervening with co-existing mental health demands of children with disabilities was noted by clinical managers.

          Conclusion

          Findings could be used to create a user-friendly database to easily identify suitable services and to advocate for services/resources that are lacking.

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          Most cited references45

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          COVID-19 pandemic and mental health consequences: systematic review of the current evidence

          Highlights • COVID-19 patients displayed high levels of PTSS and increased levels of depression. • Patients with preexisting psychiatric disorders reported worsening of psychiatric symptoms. • Higher levels of psychiatric symptoms were found among health care workers. • A decrease in psychological well-being was observed in the general public. • However, well conducted large-scale studies are highly needed.
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            Parents' Stress and Children's Psychological Problems in Families Facing the COVID-19 Outbreak in Italy

            Objectives: The present study aimed to explore the effect of risk factors associated with the COVID-19 outbreak experience on parents' and children's well-being. Methods: Parents of children aged between 2- and 14-years-old completed an online survey reporting their home environment conditions, any relation they had to the pandemic consequences, their difficulties experienced due to the quarantine, their perception of individual and parent-child dyadic stress, and their children's emotional and behavioral problems. Results: Results showed that the perception of the difficulty of quarantine is a crucial factor that undermines both parents' and children's well-being. Quarantine's impact on children's behavioral and emotional problems is mediated by parent's individual and dyadic stress, with a stronger effect from the latter. Parents who reported more difficulties in dealing with quarantine show more stress. This, in turn, increases the children's problems. Living in a more at-risk area, the quality of the home environment, or the relation they have with the pandemic consequences, do not have an effect on families' well-being. Conclusions: Dealing with quarantine is a particularly stressful experience for parents who must balance personal life, work, and raising children, being left alone without other resources. This situation puts parents at a higher risk of experiencing distress, potentially impairing their ability to be supportive caregivers. The lack of support these children receive in such a difficult moment may be the reason for their more pronounced psychological symptoms. Policies should take into consideration the implications of the lockdown for families' mental health, and supportive interventions for the immediate and for the future should be promoted.
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              An update on the prevalence of cerebral palsy: a systematic review and meta-analysis.

              The aim of this study was to provide a comprehensive update on (1) the overall prevalence of cerebral palsy (CP); (2) the prevalence of CP in relation to birthweight; and (3) the prevalence of CP in relation to gestational age. A systematic review and meta-analysis was conducted and reported, based on the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-analyses) statement. Population-based studies on the prevalence of CP in children born in 1985 or after were selected. Statistical analysis was carried out using computer package R, version 2.14. A total of 49 studies were selected for this review. The pooled overall prevalence of CP was 2.11 per 1000 live births (95% confidence interval [CI] 1.98-2.25). The prevalence of CP stratified by gestational age group showed the highest pooled prevalence to be in children weighing 1000 to 1499g at birth (59.18 per 1000 live births; 95% CI 53.06-66.01), although there was no significant difference on pairwise meta-regression with children weighing less than 1000g. The prevalence of CP expressed by gestational age was highest in children born before 28 weeks' gestation (111.80 per 1000 live births; 95% CI 69.53-179.78; p<0.0327). The overall prevalence of CP has remained constant in recent years despite increased survival of at-risk preterm infants. © The Authors. Developmental Medicine & Child Neurology © 2013 Mac Keith Press.
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                Author and article information

                Contributors
                Journal
                Front Rehabil Sci
                Front Rehabil Sci
                Front. Rehabil. Sci.
                Frontiers in Rehabilitation Sciences
                Frontiers Media S.A.
                2673-6861
                2673-6861
                30 May 2023
                2023
                : 4
                : 1118769
                Affiliations
                [ 1 ]Integrated Center of Health and Social Services of Laval, The Research Center of the Jewish Rehabilitation Hospital , Laval, QC, Canada
                [ 2 ]Faculty of Medicine and Health Sciences, School of Physical and Occupational Therapy, McGill University , Montreal, QC, Canada
                [ 3 ]Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR) , Montreal, QC, Canada
                [ 4 ]Faculty of Arts and Sciences, McGill University , Montreal, QC, Canada
                Author notes

                Edited by: Filipa Sampaio, Uppsala University, Sweden

                Reviewed by: Mary Gannotti, University of Hartford, United States Ana Paula Scoleze Ferrer, University of São Paulo, Brazil

                [* ] Correspondence: Jessica Hanson jessica.hanson2@ 123456mail.mcgill.ca

                Abbreviations NDD, neurodevelopmental disability.

                Article
                10.3389/fresc.2023.1118769
                10267822
                37325126
                e7d36fb4-bcb0-4f84-bc85-3f693153f4ba
                © 2023 Hanson, Heslon and Ogourtsova.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 07 December 2022
                : 16 May 2023
                Page count
                Figures: 3, Tables: 1, Equations: 0, References: 56, Pages: 0, Words: 0
                Funding
                Funded by: Centre for Interdisciplinary Research in Rehabilitation (CRIR)
                Award ID: 2021–2022 (PI, TO)
                This project is funded through the Centre for Interdisciplinary Research in Rehabilitation (CRIR) New Initiative Fund 2021–2022 (PI, TO).
                Categories
                Rehabilitation Sciences
                Brief Research Report
                Custom metadata
                Disability, Rehabilitation, and Inclusion

                mental health services,childhood disability,environmental scan,neurodevelopmental disability,covid-19 pandemic

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