27
views
0
recommends
+1 Recommend
1 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      Barriers to family-centred care of hospitalised children at a hospital in Gauteng

      research-article

      Read this article at

      ScienceOpenPublisherPMC
      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Background

          Hospitalisation is a stressful event for the admitted child and the family. The unfamiliar and stressful hospital environment could increase children’s anxiety and pain experiences. Family-centred care has the potential to promote families’ holistic health, but its implementation is limited.

          Aim

          To describe the barriers to family-centred care at a specific hospital in Gauteng.

          Setting

          The study was contextual and was conducted at a specific hospital situated in Gauteng.

          Methods

          A descriptive qualitative research design was used to collect data from 11 nurses and 14 primary caregivers of hospitalised children. Purposive sampling was used. Data were collected using semi-structured interviews and analysed using qualitative content analysis. Rigour through measures to enhance trustworthiness was ensured and ethical principles related to research with human participants were adhered to.

          Results

          Three themes indicating the barriers to family-centred care emerged from the data, namely nurse-primary caregiver relationship, primary caregiver involvement, and ward structure and policy.

          Conclusion

          Barriers to family-centred care involved interpersonal, environmental, and managerial dimensions of the hospital environment where children received care and treatment. A need to enhance family-centred care was therefore identified in order to address relational dimensions of the nurse-primary caregiver relationship, ward structure, and revision of current policies.

          Contribution

          The article highlights barriers to family-centred care to enable action to be taken in the clinical environment to enhance a family-centred approach and improve the hospitalisation experience for children and caregivers.

          Related collections

          Most cited references56

          • Record: found
          • Abstract: found
          • Article: not found

          Patient- and family-centered care and the pediatrician's role.

          (2012)
          Drawing on several decades of work with families, pediatricians, other health care professionals, and policy makers, the American Academy of Pediatrics provides a definition of patient- and family-centered care. In pediatrics, patient- and family-centered care is based on the understanding that the family is the child's primary source of strength and support. Further, this approach to care recognizes that the perspectives and information provided by families, children, and young adults are essential components of high-quality clinical decision-making, and that patients and family are integral partners with the health care team. This policy statement outlines the core principles of patient- and family-centered care, summarizes some of the recent literature linking patient- and family-centered care to improved health outcomes, and lists various other benefits to be expected when engaging in patient- and family-centered pediatric practice. The statement concludes with specific recommendations for how pediatricians can integrate patient- and family-centered care in hospitals, clinics, and community settings, and in broader systems of care, as well.
            Bookmark
            • Record: found
            • Abstract: found
            • Article: not found

            Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

            Family-centered care (FCC) is a partnership approach to health care decision-making between the family and health care provider. FCC is considered the standard of pediatric health care by many clinical practices, hospitals, and health care groups. Despite widespread endorsement, FCC continues to be insufficiently implemented into clinical practice. In this paper we enumerate the core principles of FCC in pediatric health care, describe recent advances applying FCC principles to clinical practice, and propose an agenda for practitioners, hospitals, and health care groups to translate FCC into improved health outcomes, health care delivery, and health care system transformation.
              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              WHAT IS “FAMILY-CENTRED CARE”?

              Family-centred care is a ubiquitous term in paediatric health facilities. It means that an admitted child can never be treated as a single individual patient, that the family is the unit of care, as the parents and family are central to the child’s wellbeing, especially during traumatic experiences. There is no rigorous evidence that family-centred care works, but qualitative research is drawing out some grave concerns with how it is implemented. Part of the problem is that there are many descriptions of family-centred care, but few definitions, and some of its component parts may be in place in some health services without the whole model being in place. This causes confusion amongst health professionals and parents and children, and makes it impossible to test in a randomised controlled trial. This paper discusses these problems and suggests that a new model, child-centred care, may be a better model of care for children.
                Bookmark

                Author and article information

                Journal
                Health SA
                Health SA
                HSAG
                Health SA Gesondheid
                AOSIS
                1025-9848
                2071-9736
                28 October 2022
                2022
                : 27
                : 1786
                Affiliations
                [1 ]Adelaide Tambo School of Nursing Science, Faculty of Science, Tshwane University of Technology, Pretoria, South Africa
                Author notes
                Corresponding author: Yolanda Havenga, havengay@ 123456tut.ac.za
                Author information
                https://orcid.org/0000-0001-9482-8359
                https://orcid.org/0000-0002-9649-4185
                https://orcid.org/0000-0002-7161-8786
                Article
                HSAG-27-1786
                10.4102/hsag.v27i0.1786
                9634677
                36337442
                238cbeab-154c-4d00-b321-f5e6c58a2bdf
                © 2022. The Authors

                Licensee: AOSIS. This work is licensed under the Creative Commons Attribution License.

                History
                : 28 August 2021
                : 16 August 2022
                Categories
                Original Research

                primary caregivers,nurses,barriers,family-centred care,hospitalisation,children

                Comments

                Comment on this article

                scite_
                0
                0
                0
                0
                Smart Citations
                0
                0
                0
                0
                Citing PublicationsSupportingMentioningContrasting
                View Citations

                See how this article has been cited at scite.ai

                scite shows how a scientific paper has been cited by providing the context of the citation, a classification describing whether it supports, mentions, or contrasts the cited claim, and a label indicating in which section the citation was made.

                Similar content462

                Cited by4

                Most referenced authors190